I'm reaching out for help, because I want to give my child Angel a gift that she will take with her the rest of her life. At the age of our Angel was diagnosed with JRA, and a year after that she was also diagnosed with Uveitis. To try and explain, JRA is arthritis in children, and in children the arthritis doesn't only affect the joints in the body, like it does in adults. Some types of JRA arthritis also affects the organs in children.
It can affect the eye's, heart and kidneys etc. A good majority of children out grow JRA, but Angel was not one of those children that are lucky enough to out grow JRA. In Angel's case it continued to get worse. By the time they located the Uveitis it had cause her to have a cataract in her left eye. The doctors did surgery and she receive a little bit of her vision back. It wasn't long before her eye's ben to flare up again. Angel is now thirteen and she has gone totally blind in her left eye. she has receive several other surgeries on her left eye, plus surgeries on her knee joints. Every month we travel two hours to Children's Hospital of Milwaukee. There are months we travel to Milwaukee three to four times a month. Angel receives infusions every month, she has been on almost every medication there is for children for treatment for this illness, she also has to have eye drops put in each eye every day , six in her left eye and four in her right eye. Around the age of nine they diagnosed her as having a Chronic Illness that she will never out grow. Throughout all the hardships this girls been through, she still carries straight A&B in school. Plus on average she misses school at least six to ten days of school a month. I don't know how she does it but I'm very, very proud of her. This is why I'm asking for help so I can do something very special for her. I am also on disability so this makes it hard for me to afford anything special for her.
My wish is to give her a vacation of a life time, a vacation that will she will remember the rest of her life. Because none of the doctors can give me any type of diagnosis of what her condition will be a five years from now or a year from now.
Please fell free to research what JRA and Uveitis does to children. Please feel free to contact me about her condition.
Angel & Julie
143 Water Street
Apt. 100
Berlin, WI 54923
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