August 26th I delivered the most beautiful baby girl I had ever seen. She was a healthy little 5lb 2oz baby, except she was born with a broken heart. Bella was diagnosed with Tetralogy of Fallot during my 20 week ultrasound. She stayed in the NICU for a week before she was transfered to the Children’s hospital of Pittsburgh. She ended having open heart surgery when she was just 9 days old. We spent a total of 6 weeks in the hospital before she was able to come home. A week before Christmas she ended up with a really bad case of pneumonia, resulting in her being hospitalized at the children’s hospital again. They got her pneumonia taken care of and she was sent home. On February 12, 2016 we woke up like we do on any normal day. Except this day was going to change our life again. I was making Bella’s bottle when I looked over and she was coughing up blood clots. We went to our local ER and while there she started to poop out blood and clots. We were once again transported to the children’s hospital which is over 2 hours from our house. Once we were here they did everything they could to find the bleed. She ended up needing surgery on her liver on the 18th to stop the internal bleeding. My poor 6 month old baby has been through so much in her tiny life. She is one of my warriors. The other warrior in my life is my husband, Jeffrey, he was also born with Tetralogy of Fallot. He was not diagnosed until he was 9 months old. He kept having Tet spells and his parents couldn’t figure out what was wrong with him. They ended up taking him to the emergency room one night while he was having one. The Dr’s did an echo and ended up rushing him to the OR to do emergency surgery on his heart. That was the first open heart surgery he had. The second one came when he was 6 and his heart had stopped working like it was supposed to. The doctors had hoped that would be his final surgery. It worked for about two years when he went in for his 3rd open heart surgery. He did not need to have surgery again until he was 25 when his heart stopped for no explainable reason. He had to have a defibrillator placed to keep his heart beating and at a safe pace. He is now 30 and on life sustaining medication because of his heart. My warriors are my world. Broken hearts or not they are the most amazing loving people a girl could know.
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