My daughter, McKenzie, was born with HLHS… but she was every bit perfect.. She had her first heart surgery at 3 days old, we staid for 3 weeks and we’re sent home… we had 5 amazing months at home before it was time for her 2nd surgery… this time we staid….she caught pneumonia, MRSA and CMV… at 6 1/2 months, she was coming off of 2 weeks on ECMO (heart and lung bypass) and her O2 was dipping into the teens… the doctors told us it was time to say goodbye… it was Good Friday, 2012… I asked for her to be put into my arms. My husband and I were surrounded by family and friends… we had asked for a lock of her hair to be clipped before we pulled the breathing tube and as they were looking for scissors, her being in a more vertical position in my arms, her oxygen levels started rising… they promised me that this was false hope and it’s very common for this to happen but that there was no chance, they were just keeping her alive until we were ready… they clipped a piece of her hair, did feet and handprint molds and gave us a little grievance box to put them in…… My husband and I chose not to pull the vent and wait until she went on her own…. she woke up Easter morning…. she came out of the paralytic and looked around…. we ate Easter dinner in the cafeteria with plasticware… but we were still there…. when instead, we should have been home planning a funeral…. the doctors told me that they had to cauterize her (basically weld her back together for us to say goodbye without being covered in blood) to stop the bleeding and there was no answers other than a miracle … We had another 3 months with Kenzie… until she went peacefully in my arms on her own time…she was 6 days shy of turning 10 months… <3 Love to all of you heart Mommas….
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