My heart hero was born weighing more than ten pounds. She appeared to be healthy. The normal jaundice that some baby have. She spent a week in the hospital and then we went home. The next year of her life was a struggle but didn’t have a clue that a baby could be born with a heart defect. I had no idea the signs were all there but as clueless as I was I listened to her doctor. She would soak her sheets with sweat when she slept, hands, feet and face cold, couldn’t keep food down, was yellow in color, didn’t cry, and slept all the time. They put her on reflux medication and special formula that helped her kept food down. At her 12 month appointment the doctor told me she could hear a faint murmur in her heart and sent her to a pediatric cardiologist. Two weeks later I would hear the news no mother wants to hear, her heart had two holes in the upper chamber, ASD. She went on medications to help her. During the summer she had gotten sick and stopped breathing and sent us to our local ER. It was the first time I saw her heart, the same size as her rib cage. Six months later she would go into open heart surgery due to the holes getting bigger instead of smaller. She was 18 months old when she had her surgery and so brave. She is doing great and will be turning 13 in less than a month.
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