Learning we were pregnant with our second child so soon was a huge shock not just for us but for everyone. I found out when I was almost 9 weeks pregnant. I am chronic diabetic so there is always huge risks involved. After our 1st sonogram at 10 weeks our baby had a heart rate of 136. Our 3rd visit our baby had a heart rate of 97, at this time our ob/gyn told us that I was gonna be sent to a specialist but the chances of our child surviving were pretty slim. We prepared for the worst, but we continued to see the high risk specialist who told us we were going to have a boy who seemed to have heart problems. They sent us to a cardiologist where we learned our son had a CHD. At 30 weeks I was admitted to the hospital by the high risk specialist and at 31 weeks our son was born. Leonel Rey Rangel, also known as Lion Heart. He was born with the strength of a Lion, and Lions fight they do not give up. He was 4 lbs 3 oz and was in the NICU for 2 months. After we were sent home we had a few episodes where he would stop breathing and turn purple and blue. The last episode he completely stopped breathing, his dad performed cpr while his grandfather drove to our local ER. We were then airlifted to Driscoll Childrens hospital we stayed there for a month before they performed his first heart cath. We were told he had ASD, VSD, bilateral left sidedness, interrupted IVC. On October 21st right before he turned 6 months, he received open heart surgery (OHS) to repair his CHD. He fought his way through so much and our baby boy is almost 10 months now. We have seen a huge difference he smiles through every trial. He is so bright and loving. Last week after his 3 month follow up we were told his main artery was narrowing and his ASD is re-opening. He received a new diagnoses of TAPVR. We know our trials are not over and we know we have a long way to go but our baby boy has been fighting this entire time to be in this life and he hasn’t given up and we will never give up on him. We realize that there isn’t a cure but a temporary fix for CHD, it is our job as his guardians to help others and let them know that we are 1 in 100.
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