Lilly was born healthy and happy but little did we know that she was hiding two heart defects from us . She failed her pulse ox test at her newborn screening and that’s when our lives changed. Were flown to UCLA to have her first open heart surgery as she has transposition of the great arteries and an unbalanced AV canal. She got her PA banding at 2 weeks old and by one month we were abl to go home. She has been so resilient and happy baby that you would never guess she had problems and undergone major surgery. By 7 months old she had her bilateral Glenn shunt and by the latter part of the day she was kicking and laughing and smiling to everyone who came and saw her. She was such a delight in her cabbage patch costume she was wheeled around to all the other children in the Picu to spread the joy ! We are now 4 months post her Glenn and she is thriving !
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