At 6 days old my son Larry Jeffery began losing interest in nursing. Feeling defeated we decided to try him on a bottle but called a lactation consultant in the mean time. By day 7 of life he had already lost interest in a bottle as well. A lactation consultant named Kim (who I will always remember as the woman that saved my son) came to our home to assist in feeding. Within five minutes of her visit she urged us to rush him to the emergency room. As first time parents we were terrified for our son. He was admitted to the local emergency room for respiratory distress and immediately worked on by a large number of doctors and nurses all trying to administer an IV. His blood pressure along with his blood sugar were dangerously low, and with nobody able to get a line in him, the doctor quickly pulled out a drill and drilled a line into his shin bone. Shortly after that line was finally placed he was intubated. 6 hours into his emergency room visit a transport team from Loma Linda Children’s Hospital was called because the emergency room wasn’t equipped to diagnose him. Less than an hour after being admitted to the NICU at Loma Linda we were advised that he would not make it through the night and that he was diagnosed with a CHD called Interrupted Aortic Arch type b. His rare condition is typically operated on within the first week of life. And here is my son at 8 days old with complete organ failure in his kidneys and liver. Because of the condition he was in we would wait the next 4 weeks for him to undergo open heart surgery. His cardiologist and surgeon advised us it would be best to just take him home and make him comfortable until he passed. His chances of surviving was only 30-50%, and even then his quality of life did not look good. Trach tube, permanent gtube, and full disability was likely his outcome. His daddy and i agreed there was no doubt and we went ahead with surgery. We had to give our faith to god and give our son a fighting chance at life. His surgery went better than anyone had every expected, and at this moment I am sitting feeding my son his before bed rice cereal by mouth (he had his gtube removed last month) at almost 5 months old. He will need one more open heart surgery around a year and a half, and has had his share of complications. But for right now he is healthy, happy, and developmentally on track. We are thankful for every day we have our son, and are looking forward to a lifetime of memories ahead of us.
Read More Heart Stories
Raise Money Online to Help a Loved One in Need
Starting a Move Your Mountain online fundraiser is a great way to show support for a loved one.
Did you know that you can raise money for anything on our website? Did you know that you can raise money for yourself or for someone else?
A Move Your Mountain fundraiser gives the community an opportunity to step in and come together to show love and support.