June 14, 2010, the day our lives changed forever. Paisley Jo Hernandez was born at 11:54 pm, 6 lbs 9.1 oz 19 inches long! She was the most beautiful thing we had ever seen. She was healthy and perfect….. Or so we thought. At 6:30 in the morning, Paisleys assigned Doctor came by to do a morning check up. While there she was crying and turned blue. That caught his attention, he then listened to her and found a severe heart murmur. They immediately swept her off to the nursery and put her on oxygen and monitoring. Unfortunately the pediatrician was awful and we had tons of issues with him, but that evening they decided to airlift us to Lubbock, TX UMC NICU. We were still terrified but had so much relief that we were going to have an amazing team fighting for her! We had to drive an hour and a half to get there at which she had already been there for an hour. We were immediately called into a small consultation room and given the dreadful news. Our perfect little girl had Tetralogy of Fallot! Her heart was broken. We were told she would be in the hospital for an entire year and would have open heart surgery within 1 week. We were absolutely devestated. We did some research and learned that our sweet girl was what they called a Blue Baby. She had a VSD which meant her ventricular artery was constricted and she wasn’t getting oxygenated blood throughout her body, which caused her to turn blue, and not able to breathe well. In addition she had 6 holes in her heart, and an enlarged heart. We were in NICU at UMC for 11 days then were transferred to Covenant NICU where she was scheduled for open heart surgery. After arriving she was checked by the resident pediatric cardiologist and he and the surgeon saw no reason to do surgery at that time! After 3 days at 2 weeks old we were released to go home. We had a list of medications and a home heart monitor. At a month old we went back to covenant to have a balloon procedure to open up the constricted valve. After this she remained on meds and monitors until 6 months old! At this time we were scheduled for Open Heart Full Repair Surgery. At 7 months old on Valentine’s Day 2011, we headed to for Dallas Children’s Hospital. Halfway to Dallas, 2 days before surgery we received a phone call that our surgeon had an emergency and had to leave the state! We were in a minor state of panic! We were literally given a list of names and had to pick one. We decided God had taken care of us this far, He isn’t going to stop now. We prayed as a family and followed
Some guidance from our pediatricians, and chose a doctor. After meeting Dr. G, we knew it was a complete God thing. She was an absolute gift from Heaven. Every aspect of her career aligned with our story. Even to the point that she became a Cardiologist because her brother had Tetralogy of Fallot, the same as our Paisley! She was an absolute expert. The morning of surgery we were a strong, stable mess. We handed out precious baby to a team of doctors and nurses and entrusted them to protect her, keep her safe, love her, comfort her, and save her life. 5 1/2 hours later we received a call that it was finished and had gone excellent! They patched most of the holes and SAVED her thin damaged valve. This meant she would never need any medications and no further surgeries! We were shocked and blessed!! She was to be in recovery no less that 10 days! We were released on day 5! Here we are 5 years later, perfect and healthy!! Blessed!
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